Childhood Sjogren Disease Long Term Outcomes

The purpose of this research is to describe the natural history of children diagnosed with, or suspected of being at risk for development of, childhood Sjogren Disease. This is a critically understudied disease in children that may present in different ways than it does in adults. It is unknown if the long-term prognosis or response to treatment is different from adults with the disease.
This registry will allow us to explore these questions with the aim of improving the lives of children impacted by this rare disease.